England Rare Diseases Action Plan 2026

England Rare Diseases Action Plan 2026: main report

England Rare Diseases Action Plan 2026, annex A: actions and status

Details

The UK government and devolved governments published the UK Rare Diseases Framework in January 2021.

The framework set out a shared vision for addressing health inequalities and improving the lives of people living with rare diseases across the UK.

We committed to publish action plans annually during the lifetime of the UK Rare Diseases Framework.

This action plan:

• reports on progress against our existing 39 actions
• introduces one new action

A simplified version will be published shortly.