England Rare Diseases
Action Plan 2024: main report
England Rare Diseases
Action Plan 2024: annexes
Details
The UK government and devolved administrations
published the UK Rare Diseases
Framework in January 2021, setting out a shared vision
for addressing health inequalities and improving the lives of
people living with rare diseases across the UK.
The framework outlined 4 key national priorities:
- helping patients get a final diagnosis faster
- increasing awareness among healthcare professionals
- better co-ordination of care
- improving access to specialist care, treatment and drugs
To turn this vision into action, each of the
4 UK nations has committed to developing
nation-specific action plans detailing how these priorities will
be addressed.
This is England’s third Rare Diseases Action Plan, following our
commitment to publish action plans annually during the lifetime
of the UK Rare Diseases Framework. This action plan has been
developed in close collaboration with delivery partners across
the health system and the rare disease community. The 2024
England Rare Diseases Action Plan will report on progress against
our existing 29 actions as well as introducing 7 new actions to
improve the lives of people with rare diseases for the year
ahead.
