The Thalidomide Health Grant has been providing support since
April 2013, and currently provides help to more than 400 people
in the United Kingdom through direct cash grants to help access
personalised specialist care, rehabilitation and treatment.
The grant currently runs until April 2023, but is expected to make a lifetime commitment to fund the
scheme – with a £39m down payment that will cover the next four
years.
Future funding figures for the grant will then be confirmed
every four years.
Chancellor of the Exchequer said:
“Thalidomide survivors and their families face
daily challenges as a result of the drug – whilst we can’t
change what happened, we can do everything possible to make
their lives easier.
“That’s why I feel it is our duty to make this lifetime
commitment to them, so they have the financial security they
need, and can access support.”.
Beneficiaries are able to personalise how the money is spent to
meet their individual needs, and the Thalidomide Trust will
continue to manage and oversee the grant.
Deborah Jack, Executive Director of the Thalidomide
Trust said:
“This is fantastic news. Sadly, as our beneficiaries age they
are experiencing multiple health problems in addition to their
original thalidomide damage and the costs of meeting their
complex needs are significant.
“We are really pleased that the government has recognised this
by committing to lifetime financial support and also agreeing
to review the level of funding regularly to ensure it is
meeting their changing needs.”
Rowland Bareham, a beneficiary of the Thalidomide Trust
and Chair of the charity’s National Advisory Council
commented:
“I know that, like me, thalidomide survivors across England
will be delighted and relieved that the government has
guaranteed funding for their whole lives.
“Since it was introduced in 2010, the government Health Grant
has made an enormous difference to the quality of our lives –
helping us to manage our high levels of pain and maintain our
mobility and independence without risking further damage.”