Extracts from Westminster Hall debate on Cystic Fibrosis Drugs: Orkambi - Jun 10
Tuesday, 11 June 2019 07:46
Kerry McCarthy (Bristol East) (Lab):...The term “buyers’ club”
comes from the Hollywood film, “Dallas Buyers Club”, which gave a
fictionalised account of the buyers’ clubs that popped up in the
’80s and ’90s because of the lack of access
to HIV treatment. The clubs enable patients to understand
their right to procure more affordable generic versions of drugs
that they would otherwise struggle to access... ...The Government
should also explore the funding of a...Request free trial
(Bristol East) (Lab):...The
term “buyers’ club” comes from the Hollywood film, “Dallas Buyers
Club”, which gave a fictionalised account of the buyers’ clubs that
popped up in the ’80s and ’90s because of the lack of access
to HIV treatment. The clubs enable patients to
understand their right to procure more affordable generic versions
of drugs that they would otherwise struggle to access...
...The Government should also explore the funding of a
large-scale clinical trial, which would enable the NHS to use
research exemptions in intellectual property rights law and allow
it to use the generic version of Orkambi. That approach has been
used before, with the HIV prevention medication PrEP, or
pre-exposure prophylaxis, and ensured that tens of thousands of
patients were able to access that drug while its expensive branded
counterpart was still under patent—I would be particularly
interested in Minister’s response to that. A trial could be set up
in anticipation of a Crown use licence, providing data necessary to
support regulatory approval of the generic version of
Orkambi...
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