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The Department for Health and Social
Care (DHSC) and NHS England (NHSE) do not clearly understand
what proportion of palliative and end-of-life care is delivered
by independent adult hospices, and therefore, how much they are
reliant on the sector, or what the real impact of government
funding is.
- Nearly two thirds of adult hospices reported a financial
deficit in 2023-24, with combined income from fundraising and
government funding in decline.
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Demand for
hospice care is projected to rise, placing further pressure on adult hospices,
some of which are already reducing the services they can
provide.
The government does not fully
understand how its funding for palliative and end-of-life
services, provided both within the NHS and by independent adult
hospices, is being used to support rising demand for palliative
and end-of-life care due to a lack of data, a new National Audit
Office (NAO) report has found.1
Hospices are charities that provide
palliative and end-of-life care services across the UK, and are
partners within the NHS's local care
systems.
With the demand for palliative and
end-of-life care anticipated to rise in line with an expected
increase in the number of older people in England dying or
choosing to spend the end of their lives under the care of a
hospice, further pressure will be placed on the financial
resilience of the sector.
The availability of hospice care
varies greatly across England. Charitable hospices were set up
through voluntary action, and the variation in availability is a
result of the unplanned way the sector
developed.2
Funding from Integrated Care Boards
(ICBs), through grants or contracts, met 40% of independent adult
hospices expenditure on services in 2023-24, equating to over
£400 million. But a lack of central oversight from DHSC means it
is unclear what this funding is specifically used for, or whether
it is sufficient to maintain the sector's future without more
services having to be delivered by the NHS to meet increasing
demand.
DHSC and NHSE do not currently know
how much palliative and end-of-life care independent adult
hospice provide in England, and therefore how reliant they are on
the sector, because the way they provide funding to hospices
makes it difficult to determine the level of activity delivered
and limited financial and activity data are
available.3
Although DHSC and NHSE have no
statutory responsibility in relation to independent hospices, it
is important that hospices are financially sustainable so that
they can provide the level of palliative and end-of-life care
that DHSC and NHSE rely upon. NHSE has increasingly recognised
and increased its role in palliative and end-of-life care in
recent years.
Nearly two thirds of independent
hospices reported a deficit in 2023-24, and overall
expenditure was £78 million more than the income generated. In
response to this, some hospices have reduced
services,4
and there have been cuts to both beds
and staff.
The financial resilience of the
independent adult hospice sector faces further challenges due to
the declining return on investment from fundraising. A
continuation of this downward trend could lead to increased
reliance on government funding to provide palliative and
end-of-life services.5
The government made several large
additional payments to provide extra capacity for the NHS during
the COVID-19 pandemic. Since then, there has been an additional
injection of £100 million of capital funding to support hospices'
infrastucture.6
, head of the NAO,
said:
“Independent hospices play a key
role in providing palliative and end-of-life care and provide
choice for people at the end of their
lives.
“With many more people expected to
want hospice care in the future, it is crucial that the sector is
financially resilient. DHSC and NHSE should assess how they would
meet increased demand for palliative and end-of-life care should
services delivered by independent adult hospices be
insufficient.”
ENDS
Notes to editors
-
The report will be available
on the NAO website from 00:01 Wednesday 29 October.
- ICBs are NHS organisations responsible for planning health
services for their local population. This variation in
availability reflects the unplanned way the independent adult
hospice sector has developed since the 1960s, as local charities
outside of the NHS. The range of services individual hospices
offer also varies.
- All independent hospice charities across the UK, including
Marie Curie and Sue Ryder, are members of the umbrella
organisation Hospice UK, which supports the sector and advocates
on its behalf. Data on these independent hospices is collected by
Hospice UK.
- In 2024-25, the NAO was aware of 11 independent adult
hospices in England which reported service reductions or staff
redundancies, and other hospices have announced plans to reduce
services, in response to reduced income. Cuts appear to be across
all types of services offered by hospices.
- Charitable donations and fundraising made up two thirds of
the sector's income in 2023-24. The independent adult hospice
sector's overall fund-raising rate of return has been decreasing
since 2021-22, decreasing to £1.96 per £1 spent in 2023-24. If
this downward trend continues, the sector will have less total
income to fund its palliative care services and hospices will
become, in general, more reliant on government funding if they
are to maintain their levels of service.
- Over 2020-21 and 2021-22 during the COVID-19 pandemic, NHS
England provided independent adult hospices with £384 million in
three waves to secure and provide extra capacity for the NHS,
including inpatient and hospice-at-home beds. In December 2024,
DHSC announced a £100 million one-off capital fund over 2024-25
and 2025-26 for adult and children's
hospices.