- Changes will extend eligibility to end of life support from
six to 12 months from 4 April 2022
- Those nearing end of life will be given fast-tracked access
to Universal Credit and Employment and Support Allowance
- Delivering on 2021 commitment, the move ensures more people
receive vital financial support quicker
Regulations are being laid today and come into force next month.
They mean that from 4 April 2022, people who are thought to be in
their final year of life will be able to receive vital support
through the ‘Special Rules’, six months earlier than they are
able to at present.
Those who are eligible will not be subject to a face-to-face
assessment or waiting periods, and in the majority of cases
they will receive the highest rate of benefits.
Minister for Disabled People said:
We want to ensure people in the final year of their lives get
quicker access to vital financial support.
We have listened to those with a terminal illness, as well as
their families and friends, and we are delivering a change that
will increase much-needed support in the most challenging of
times.
Matthew Reed, Chief Executive of the end of life charity, Marie
Curie, said:
After the announcement in the summer and following years of
campaigning for this change to be put in place for dying people,
we are pleased to see this next step come into place for
Universal Credit and ESA claimants. This will ensure more
dying people can concentrate on making the most of the limited
time they have left, rather than worrying about their
finances. Marie Curie believes that everyone has the right
to the best end of life care and support.
Sally Light, CEO of the Motor Neurone Disease Association
said:
I welcome the announcement that changes to the Special Rules
criteria will come into force next month for Employment and
Support Allowance and Universal Credit. This change will enable
more people living with complex and unpredictable terminal
illnesses like motor neurone disease to access the support they
need swiftly and sensitively, without the need for a face-to-face
assessment. This is an important first step and we hope that this
positive change can be enacted for other applicable benefits as
soon as possible.
The 12-month approach will be implemented first in Universal
Credit and Employment and Support Allowance and will come into
effect on 4 April. It will then be extended to Personal
Independence Payment, Disability Living Allowance and Attendance
Allowance as soon as Parliamentary time allows.
Clinicians will still have discretion under the updated rules and
will be supported by a realistic and straightforward definition,
which aligns with current NHS practice.