The Health and Social Care Committee will hold a one-off session
tomorrow, Tuesday, on the plans for the Government’s new patient
data-sharing scheme, including questions to Health Minister
.
The implementation of the scheme which enables NHS Digital to
share data from GP medical records, officially known as General
Practice Data for Planning and Research, has been delayed until
September 2021.
MPs will consider the benefits to medical research and
improvements to NHS planning that could be achieved by the plans
for ongoing extraction of GP patient data.
The Committee will also consider the risks associated with
extracting data on this scale, including concerns that
confidential health data could be used by marketing or insurance
companies and that individual patients may be identifiable,
despite processes which are intended to prevent this from
happening.
The hearing will also examine the extent to which patients
understand how their data is used by the NHS, the strength of the
opt-out options available to patients, and parallels with the
care data scheme which was closed in 2016.
Witnesses from 09.30:
-
Professor Sir Martin Landray, Professor of Medicine and
Epidemiology at the University of Oxford, Deputy Director of
Oxford University’s Big Data Institute, Joint lead RECOVERY
clinical trial
-
Nicola Perrin, Director of Policy and Public Affairs,
Association of Medical Research Charities
-
Phil Booth, Coordinator, MedConfidential
At approx. 10.30:
-
,
Parliamentary Under Secretary of State (Minister for
Innovation), Department for Health
-
Simon Madden, Director of Policy & Strategy at NHSX
and Chair of the Health and Care Information Governance Panel,
NHSX
-
Simon Bolton, Interim CEO, NHS Digital
-
Dr Nicola Byrne, National Data Guardian
